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العنوان
Effect of Health Teaching for Mothers on Quality of Life for Their Children with Rheumatic Arthritis /
المؤلف
Mohamed, Samar Abd El-Gawad Shafek.
هيئة الاعداد
باحث / سمر عبد الجواد شفيق محمد
مشرف / ابتسام محمد السيد
مشرف / نجفة حافظ فرج
مشرف / مها السيد العربي
الموضوع
Pediatric Nursing.
تاريخ النشر
2024.
عدد الصفحات
244 p. :
اللغة
الإنجليزية
الدرجة
ماجستير
التخصص
طب الأطفال
تاريخ الإجازة
15/5/2024
مكان الإجازة
جامعة طنطا - كلية التمريض - تمريض الاطفال
الفهرس
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Abstract

Rheumatic arthritis (RA) is one of the most common kinds of arthritis. RA is an autoimmune disorder which is characterized by inflammation in the synovial and joints damage. The role of the nurse in the management of rheumatic arthritis is varied, ranging from providing specialist advice about how to manage the condition to caring for children who are having joint replacements because of the increased levels of pain and damage it can cause. Nurses can play a vital role in helping people with rheumatoid arthritis manage the condition, cope with medication side effects, and live the best quality life. Aim of the study: This study aimed to evaluate the effect of health teaching for mothers on quality of life for children with rheumatic arthritis. Setting: Intervention study was conducted at Pediatric Rheumatic Fever Clinic of Tanta University Hospital officiated to the ministry of high education. Subject: Included 60 mothers and their children with rheumatic arthritis. Tools of research: The following tools were developed by the researcher to collect data for this study. The first tool: A questionnaire designed by the researcher to collect and evaluate the required data and consists of two parts. Part 1: Socio demographic characteristics of studied mothers and their children. a) characteristic of Mother as age, educational level, occupation, marital status, and residence. b) characteristics of children as gender, age, the child’s birth, and educational level. c) Past and present medical history of children with rheumatic arthritis Part 2: Mothers’ knowledge and practice about rheumatic arthritis (143) (Pre, Immediate and Post one month): It was used to assess mothers’ knowledge about rheumatic arthritis. Tool II: Quality of life domains for children with rheumatic arthritis (Pre, Immediate and Post one month): It was used to assess quality of life of children with Rheumatic arthritis. It consists of four domains: First Physical domain: Consist of (17 items) as complaint of pain, headache, body loss weight, constipation, nausea, exercise, and hygiene...etc. Second psychological domain: Consist of (15 items) reflect emotional status, feeling and sleeping…etc. Third domain social functioning: Consists of (16 items) covering social relations of the child such as feel joy and happiness, social relation, collective activities and keen to visit family…etc. Fourth educational domain: consists of (15 items) such as school functioning as attention at class attendance, the child has hard time thinking, has a hard time thinking and hard time focusing, solve problems and take own decision…etc. Tool III: FLACC behavioral pain assessment scale (Pre, Immediate and Post one month): It was used to assess behavioral responses of children with rheumatic arthritis toward pain. Results The main findings of the present study as following:  The mean age of the studied mothers was SD= 25.5±1.09.  Also, more than half of the studied mothers (53.3%) had a secondary education.  Besides, less than two thirds of them (61.7%) live in urban areas.  More than half of the studied children (55%) were females.  In addition, less than one fifth of them (16.7%) their age was ranged between 10 to 12 years old with mean age SD= 8.15±1.67  As well, all the studied children (100%) had primary education. Regarding the studied mothers’ at pre, immediate and post one month education regarding to their total knowledge about rheumatic arthritis of their children, declares that there is a clear improvement in total knowledge about rheumatic arthritis among the studied mothers at immediate and post one month education compared to pre- education with a highly statistically significant difference . As evidence, of the total score of knowledge at preeducation compared to less than three quarters of them at immediate education and post one month education.  the studied mothers’ at pre, immediate and post one month education regarding to total quality of life domains for their children with rheumatic arthritis, highlights that there is a high significant difference in quality-of-life domains for children with rheumatic arthritis among the studied mothers at immediate and post one month education compared to preeducation with a highly statistically significant difference.  Also, concerning to the studied children at pre, immediate and post one month education regarding to total pain assessment of their children, declares that there is a marked enhancement in total pain among the studied children at immediate and post one month education compared to pre-education with a highly statistically significant difference. As evidence, one third of them have mild pain at pre-education compared to more than half of them immediate education and post one month education  Additionally, there was a highly significant statistical positive correlation between the studied mothers’ Total knowledge and Total quality of life at Pre, Immediate and Post one month program. Conclusion In the light of the current study findings, it can be concluded that, Quality of life for children with rheumatic arthritis improved after implementation of health teaching. Recommendations Based on the current study finding the following recommendations were proposed:  Establish continuous educational and training program for children and their mothers about rheumatic arthritis to increase their knowledge, Quality of life, management of RA and prevent its complication.  Health promotion education program for children with rheumatic arthritis, and their family members are important.  Nurses, physicians, mothers, and teachers must be informed of the risk for impaired health related quality of life among rheumatic arthritis children to promote interventions that must improve health outcomes.  Replication of the study with large sample in different settings to generalize the result.